tag:blogger.com,1999:blog-8020196701240327546.post4222644806687389530..comments2023-07-18T01:52:14.134-07:00Comments on Toby Pannone: Endurance.Unknownnoreply@blogger.comBlogger32125tag:blogger.com,1999:blog-8020196701240327546.post-47117170004664927942007-11-18T06:28:00.000-08:002007-11-18T06:28:00.000-08:00I echo one of the posts above, it's been exactly t...I echo one of the posts above, it's been exactly two weeks since your last post and you don't know me personally but I'm so worried and hope and pray your silence means that you are using all your energy to fight this 3F8 phase of Toby's treatment and that you all are coping. I'm not religious but pray for Toby and constantly "visit" this blog to check in with my thoughts and prayers. You are beautiful - your souls shine through in your posts on this blog - and we are thinking of you. Two weeks ago you posted about the NY marathon - the runners of that day are done running but you continue. Many warm thoughts of strength and further endurance being sent your way. - JAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-2340783519107450222007-11-16T18:44:00.000-08:002007-11-16T18:44:00.000-08:00Thinking of Toby and hoping you are all ok.Thinking of Toby and hoping you are all ok.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-69266256490143010432007-11-16T05:38:00.000-08:002007-11-16T05:38:00.000-08:00Denise: Yes, St. Jude is an *excellent* hospital;...Denise: <BR/><BR/>Yes, St. Jude is an *excellent* hospital; however Sloan-Kettering, I believe, is the pioneer and possibly sole provider of the 3F8 treatment Toby is receiving at this time. 3F8 has proven to be very effective in fighting neuroblastoma. Rest assured that Toby couldn't be in better medical hands at this time.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-59595666909997343412007-11-15T15:20:00.000-08:002007-11-15T15:20:00.000-08:00You are all in my prayers, especially Toby. I have...You are all in my prayers, especially Toby. I have just learned of your situation and wonder if you have had an opportunity to consult with St. Jude's Childrens Hospital? I first raised funds for the hospital many years ago and continue to be amazed by their research and treatment of children with cancer. You are, of course, in a good place, but St. Jude's focus is on children battling cancer and sometimes that can make a difference. May God Bless you all and keep you in his care.<BR/><BR/>Sincerely,<BR/>Denise from Nassau Presbyterian ChurchAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-89087940660295539942007-11-15T13:18:00.000-08:002007-11-15T13:18:00.000-08:00It's been almost two weeks since your last post. ...It's been almost two weeks since your last post. I pray all is going as well as possible and Toby remains his strong and beautiful self.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-56694654440135287342007-11-14T14:10:00.000-08:002007-11-14T14:10:00.000-08:00Mookie and Stephen,I look at Toby's beautiful face...Mookie and Stephen,<BR/><BR/>I look at Toby's beautiful face on this site and I try to channel my very strongest prayers to him and to you. <BR/><BR/>Your boy has the most incredible, indelible, lasting, memorable smile. <BR/><BR/>I don't know you, but I think of you all the time.<BR/><BR/>LAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-51838262644468416292007-11-13T06:10:00.000-08:002007-11-13T06:10:00.000-08:00I'm also writing to Oprah. If enough people write...I'm also writing to Oprah. If enough people write, I think they will take notice.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-22676182544371053432007-11-12T16:02:00.000-08:002007-11-12T16:02:00.000-08:00Another week, another challange. Just remeber tha...Another week, another challange. Just remeber that there is a world of people praying for all of you, thinking of you, sending good thoughts your way.<BR/>With love -Unknownhttps://www.blogger.com/profile/10607417415907892856noreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-81009820760120852972007-11-11T14:19:00.000-08:002007-11-11T14:19:00.000-08:00Joined in writing to the Oprah show about doing so...Joined in writing to the Oprah show about doing something significant to bring attention to the state of funding (or underfunding) of research into childhood cancers. Continuing to pray for Toby and all of you.LindaSuehttps://www.blogger.com/profile/01684545110832413808noreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-50859847696640233072007-11-08T14:23:00.000-08:002007-11-08T14:23:00.000-08:00I think with the writers' strike this is excellent...I think with the writers' strike this is excellent timing... plenty of time for the producers to research both Toby's (and incredible family) story and Neuroblastoma. Our 16 y/o has a beautifully written submission to send in via the website and direct email/ producers before Tuesday. <BR/>Holding you all in our hearts constantly.Tracy & Brucehttps://www.blogger.com/profile/14250517934131657014noreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-58307064626217851112007-11-06T16:01:00.000-08:002007-11-06T16:01:00.000-08:002:37:Excellent. There are about 20 producers on s...2:37:<BR/><BR/>Excellent. There are about 20 producers on staff it seems and I only e-mailed 8 of them, so the more the merrier.<BR/><BR/>I also sent the link and a note to a major publication with a circulation of a gazillion. :0) I'll report back when I hear something.<BR/><BR/>--SusanAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-68961167724601712332007-11-06T14:37:00.000-08:002007-11-06T14:37:00.000-08:00I also wrote to Oprah and directed them to go to T...I also wrote to Oprah and directed them to go to Toby's blogspot - I included the stats that Mookie wrote of and told them that they shoudl be inspired by Toby and his family. Hopefully if they hear from more than one of us they just might pick up on this issue. <BR/><BR/>Heres to the drugs doing what they need to do - we are so sorry that Toby and all the other children afflicted with this disease have to endure so much. <BR/><BR/>Another family that has never met you personally but feels like we know you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-80099751022531501342007-11-06T12:58:00.000-08:002007-11-06T12:58:00.000-08:00Even though we have never met, I think of Toby and...Even though we have never met, I think of Toby and your family everyday. I am praying that you are all able to get through this week with as little pain as possible. I am in awe of Toby's courage.<BR/><BR/>EmilyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-56763256591859213912007-11-06T12:23:00.000-08:002007-11-06T12:23:00.000-08:00Done.--SusanDone.<BR/><BR/>--SusanAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-18639893401800477962007-11-06T07:36:00.000-08:002007-11-06T07:36:00.000-08:00After giving this some thought, if you don't mind....After giving this some thought, if you don't mind..... I will forward this to Oprah's producers today. <BR/><BR/>--Susan Zaslavsky (and Aniella & Ina)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-53869485839824954652007-11-06T07:23:00.000-08:002007-11-06T07:23:00.000-08:00We think about you everyday and hope Toby gets thr...We think about you everyday and hope Toby gets through this week. He sounds like such a strong and brave little boy.noogshttps://www.blogger.com/profile/15293825564185997115noreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-91033085104292335232007-11-05T18:59:00.000-08:002007-11-05T18:59:00.000-08:00Our hearts are aching and that pushes us to more p...Our hearts are aching and that pushes us to more prayer. Every tear is a diamond for your spiritual crown - you are wonderful parents and Toby is obviously an exceptional young man.LindaSuehttps://www.blogger.com/profile/01684545110832413808noreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-73079391800534743902007-11-05T18:28:00.000-08:002007-11-05T18:28:00.000-08:00I just read your post and I can't stop crying. I ...I just read your post and I can't stop crying. <BR/><BR/>I don't know what else to say because everything I think of doesn't sum up how much my heart is breaking for all of you.<BR/><BR/>I will be thinking of all of you and hoping for the best.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-84592321159877523812007-11-05T17:41:00.000-08:002007-11-05T17:41:00.000-08:00May God hold you in the palm of his hand, tonight,...May God hold you in the palm of his hand, tonight, and always.<BR/>Blessings & much love.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-57889598650116576062007-11-05T15:31:00.000-08:002007-11-05T15:31:00.000-08:00you all are on our minds--and we are praying, pray...you all are on our minds--and we are praying, praying, praying.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-85933728261038504722007-11-05T15:26:00.000-08:002007-11-05T15:26:00.000-08:00I also went down to 4th Avenue with my wife and tw...I also went down to 4th Avenue with my wife and two year-old daughter who cheered on the physically challenged runners by shaking a cow bell and screaming "Yay Runners!" When we got home, my wife and I were talking of Toby and my daughter said, "I'd like to say to Toby, 'Yay, Toby!'" And Stephen and Mooki and Yoni, I might add.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-48123805141484474762007-11-05T14:56:00.000-08:002007-11-05T14:56:00.000-08:00Even though I have never met Toby or his family, y...Even though I have never met Toby or his family, you are in my thoughts every day. If only prayer and good thoughts would ease his pain this week...<BR/> <BR/>Be strong. As if you had any other choice.My Evil Twinhttps://www.blogger.com/profile/04671218612583716107noreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-37352591946423278572007-11-05T14:39:00.000-08:002007-11-05T14:39:00.000-08:00I am just reading this for the first time on Monda...I am just reading this for the first time on Monday at 5:30, and I hope Toby and all of you have gotten through the day comfortably. This is such a powerful piece of writing that I hope the NY Times, or Oprah, or some appropriate medium WILL take notice and gives this the attention it so deserves.<BR/><BR/>Nancy W.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-57629815155032548682007-11-05T12:03:00.000-08:002007-11-05T12:03:00.000-08:00mooki and family,i hope the pain of the day has pa...mooki and family,<BR/>i hope the pain of the day has passed, and like all distance runners, toby is able to celebrate accomplishing his first milestone. Tomorrow, he will check off the second, and again, until he wins the race. <BR/>I would have loved to see toby's signs yesterday, i'm sure he provided a huge jolt of motivation to his doctors as they ran past him on the way to the finish line.<BR/>xoxo,<BR/>giseleUnknownhttps://www.blogger.com/profile/17114977321728640092noreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-71227115993370407082007-11-05T11:21:00.001-08:002007-11-05T11:21:00.001-08:00What can we do to help Tobe and your family get th...What can we do to help Tobe and your family get through 3f8 ???<BR/><BR/>Name it.<BR/><BR/>--Susan, Aniella and Ina ZaslavskyAnonymousnoreply@blogger.com