tag:blogger.com,1999:blog-8020196701240327546.post4720605284815649705..comments2023-07-18T01:52:14.134-07:00Comments on Toby Pannone: Pain and MemoryUnknownnoreply@blogger.comBlogger23125tag:blogger.com,1999:blog-8020196701240327546.post-32494195697967665212012-06-25T09:04:19.988-07:002012-06-25T09:04:19.988-07:00I just happened to read this and I just wanted to ...I just happened to read this and I just wanted to say I wish you and your family all the best! I myself have also NB. So best greetings from opposite side of the world, cold Finland!<3 May the power of universe take care of you on these hard days.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-63340654902521113112007-12-24T19:29:00.000-08:002007-12-24T19:29:00.000-08:00Just a note from a perfect stranger who now site, ...Just a note from a perfect stranger who now site, wiping tears away, at her keyboard. My entire family wishes you and Toby the fiercest luck - and I'm so sorry to hear of the terrible pain. Nobody should have to watch her child go through this.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-38496382448763976982007-11-24T19:27:00.000-08:002007-11-24T19:27:00.000-08:00Sending love from Blackwell, Oklahoma (on my way f...Sending love from Blackwell, Oklahoma (on my way from Dallas to Lawrence, Kansas). I can't wait to see you when I get back to Brooklyn this March, Toby! Love, RandyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-37988256518168992442007-11-23T10:23:00.000-08:002007-11-23T10:23:00.000-08:00mooki -your pain is palpable and your writing is e...mooki -<BR/><BR/>your pain is palpable and your writing is extraordinary. i am wiping tears away as i type.<BR/><BR/>i've always thought the measure of a good writer is her ability to make you feel like you are a part of the scenery. reading your entry, i felt as though i was sitting in the room with you and toby. it was a difficult and horrifying, but beautiful read.<BR/><BR/>know that we are all there with you in spirit.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-54334176948701210372007-11-20T10:51:00.000-08:002007-11-20T10:51:00.000-08:00My family and I are prayin for Toby every day. The...My family and I are prayin for Toby every day. The postin today made my cry as no child should go through so much pain at such a young age.<BR/>Love always, sarah josephineAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-57273890831102475402007-11-20T09:00:00.000-08:002007-11-20T09:00:00.000-08:00all you want for him is to get better. that's all ...all you want for him is to get better. that's all we want, too. no child should have to endure this. thinking of you always, even if I don't always know what to say.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-32018188935878798762007-11-19T16:39:00.000-08:002007-11-19T16:39:00.000-08:00Thinking of you and yours, sending you all of our ...Thinking of you and yours, sending you all of our most positive thoughts, we will be saying extra Thanks this Thursday for being given such perspective by your openness and eloquence. You are in our hearts.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-59294884756784783932007-11-19T12:01:00.000-08:002007-11-19T12:01:00.000-08:00Thank you for posting Mooki. And thanks for sharin...Thank you for posting Mooki. And thanks for sharing the band of parents link with us. I posted it on my company's blog:<BR/>http://www.echoditto.com/node/1328<BR/>and will continue to spread the word on and offline. Tell Toby I think of him everytime I ride an elevator or get on the subway.<BR/>-giseleUnknownhttps://www.blogger.com/profile/17114977321728640092noreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-68481023703141872082007-11-19T08:51:00.000-08:002007-11-19T08:51:00.000-08:00How fortunate you are to have such a strong and be...How fortunate you are to have such a strong and beautiful boy.<BR/><BR/>How fortunate he is to have such strong and beautiful parents.<BR/><BR/>You are in our thoughts...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-9624867552373974202007-11-19T08:21:00.000-08:002007-11-19T08:21:00.000-08:00I've been waiting for this post, thinking of Toby ...I've been waiting for this post, thinking of Toby and his family every day. What I find most wonderous is the fact that after all of this ugliness, he is able to bounce back and enjoy life so soon afterwards. It's good to be reminded of the resilience of the human spirit and the innocence of childhood, even when life is making it nearly impossible to retain any of it. You are all in my prayers every day.My Evil Twinhttps://www.blogger.com/profile/04671218612583716107noreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-79787529752021261342007-11-19T06:43:00.000-08:002007-11-19T06:43:00.000-08:00There are so many of us in complete support of you...There are so many of us in complete support of you, Stephen and Mooki...we all send strength for you to fight the fight, and we send love to dear Toby<BR/>Karen MesihaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-27995783555965168232007-11-19T06:27:00.000-08:002007-11-19T06:27:00.000-08:00Thank you for opening your lives to us - the many ...Thank you for opening your lives to us - the many people who have heard Toby's story and been moved by it. And thank you for giving us a chance, through your words, to know Toby and love him and pray for him and for your family. Your family now occupies a part of so many hearts. You are not alone.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-63100974502041443472007-11-19T06:20:00.000-08:002007-11-19T06:20:00.000-08:00thank you for the words. while i cannot know how ...thank you for the words. while i cannot know how you feel i hope that reading your thoughts gives you companionship--you are not alone. we are all right here, every day.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-8608112908583601682007-11-19T05:31:00.000-08:002007-11-19T05:31:00.000-08:00We had dinner last night with someone who had a ra...We had dinner last night with someone who had a rare cancer, one that only has a 12% cure rate. She fought for good treatment and cutting edge care, and thanks MSKCC for helping her land in the 12%. You are in the best place, with the strongest support group, and the most amazing child.<BR/>Our hearts go out to all of you.Unknownhttps://www.blogger.com/profile/10607417415907892856noreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-21436974886221294402007-11-19T03:45:00.000-08:002007-11-19T03:45:00.000-08:00Sending much love your way, and happy to read abou...Sending much love your way, and happy to read about the Band of Parents and delicious cookies!<BR/><BR/>Nancy W.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-67058623565554788522007-11-18T22:01:00.000-08:002007-11-18T22:01:00.000-08:00I find it amazing how Toby's four-year-old mind fi...I find it amazing how Toby's four-year-old mind finds ways to bring order to his (and your) ordeal. What a fabulous child. <BR/><BR/>I pray, I pray, I pray.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-43520624586997139512007-11-18T21:05:00.000-08:002007-11-18T21:05:00.000-08:00Dear Mooki and Stephen,Ditto on previous comment b...Dear Mooki and Stephen,<BR/>Ditto on previous comment by Ilene. Your words bring the reader as close to reality as is possible. This is an amazing articulation of an experience I didn't think I could even imagine. May your words continue to awaken people to the need for more research and treatment options for neuroblastoma. Sending strength.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-44161071095901863642007-11-18T20:39:00.000-08:002007-11-18T20:39:00.000-08:00Dear Mookie,We continue to pray for Toby and for y...Dear Mookie,<BR/>We continue to pray for Toby and for your family. Today our family convened to pool our energies together and Kiera led the prayer. Toby is an extraordinary child, put up to the challenge that no child should ever have to face, and no parent should ever have to witness. <BR/>We hope you are soon feeling again like connecting with others and that you will accept our invitation to come to our home for dinner, or just a visit/play date.<BR/>Love, <BR/>Stephanie (Kiera's mom)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-30256670678996977632007-11-18T20:19:00.000-08:002007-11-18T20:19:00.000-08:00In spite of the fact that you feel there were no w...In spite of the fact that you feel there were no words to describe the experiences of the last two weeks, your ability to put the unthinkable, the unwritable the unbearable into words, so we all can have some ability to understand what you are all going through is extraordinary. I remember commenting on your writing last spring and your saying how therapeutic it was for you. I still hope it has some therapeutic value for you.<BR/>With love and healing,<BR/>Ilenefriend of Tobyhttps://www.blogger.com/profile/01234581922080141689noreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-17369029804601396272007-11-18T20:03:00.000-08:002007-11-18T20:03:00.000-08:00Oh, Mooki... there are just no words... I continue...Oh, Mooki... there are just no words... I continue to marvel at Toby's strength - his patience and will - as well as yours. Wishing Toby days free of pain and filled with play. MirmJonah Bryfmanhttps://www.blogger.com/profile/01888289902540867015noreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-78299982422916260042007-11-18T20:01:00.000-08:002007-11-18T20:01:00.000-08:00You wrote exquisitely of something horrible - Toby...You wrote exquisitely of something horrible - Toby's pain. We continue to pray for him and all of you. Praying for his healing and your strength - thank you for the update we know it takes a great deal for you to have to put this to "paper" and you honor all of us as readers with the opportunity to care for you.LindaSuehttps://www.blogger.com/profile/01684545110832413808noreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-16428343039394562052007-11-18T18:56:00.000-08:002007-11-18T18:56:00.000-08:00Dear Mooki, thank you for taking the time to write...Dear Mooki, thank you for taking the time to write. I send you good vibes to help you through the days.<BR/>Thilde.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8020196701240327546.post-24652681958038707652007-11-18T18:47:00.000-08:002007-11-18T18:47:00.000-08:00Thank you for letting us - the anonymous people wh...Thank you for letting us - the anonymous people who are focusing their positive energy your way - know what is happening. Your analogy to the pain of labor rang true - it's hard to explain, hard to live through other than by just giving over to it while it's happening. But Toby isn't in labor and he's so young. I don't know what else to say other than, your strength and love shine through and our thoughts are with you.Anonymousnoreply@blogger.com