Wednesday, July 11, 2007

cancer is a rollercoaster

a quick post to let you know that, unbelievably, we are at home in brooklyn, after being discharged at 6 pm today. right now the home health care nurse is in our kitchen, after hooking toby up to IV antibiotics that will run for an hour, until 11 pm. tomorrow morning it will be my turn to play nurse. and friday, we'll be back at the hospital outpatient clinic for transfusions.

in short, the attending doc questioned whether the hospital was a safe environment for toby, given that he's already fighting off a pretty rare bacteria called aerococcus viridans. quite a few of the children on the 9th floor have various respiratory infections, and though toby's counts have hit zero, this doc felt he would be better off at home. of course there are risks this way too, but we are praying for no fevers or further infections.

toby is neutropenic, so full-scale germ alert is on again. we will not be able to have any guests until toby's counts come back up, hopefully within a week or so. thanks to all who contacted us following yoram's awesome post of a couple of days ago. we want you to visit, but will need to postpone until it's safe.

tomorrow yoni turns 15 (!). we are grateful to be able to celebrate with our little family together.

love, mooki + stephen


Regina said...

So glad to read this news; I will look forward to visiting when it is appropriate and helpful.

Big hugs for Yoni on his birthday--Yom Huledet Same'akh!--and for all of you on each precious "un-birthday" together.

With love and blessings,

Regina Sandler-Phillips

Anonymous said...

Thank you so much for posting news. I am one of many, many neighbors you have not met, who thinks of you and Toby often, and I am so happy Toby is home, even if it is to avoid infections from the hospital.

Congratulations to Yoni on his 15th birthday!

Jennifer (mom of three boys)

Anonymous said...

I think of you all often and am so glad you are home again. I hope Toby's numbers will be up soon and would love to visit then.
HAPPY BIRTHDAY Yoni. I was walking on the beach on Block Island last week aand saw a beautiful sand creation and thought of you all.
With loving hugs and kisses

Anonymous said...

I hope and pray that your much-needed respite at home lifts Toby's counts and everyone's spirits.

Happy, happy birthday Yoni!

Amy Burbage

Anonymous said...

Hi Yon, my intelligent, mature, handsome, smart and funny first grandson.

Happy 15th Birthday
Be curious, open minded and good to your family and friends.
I love you, Sabta Yochi.

LindaSueBuhl said...

Wonderful to be OUT of the hospital even for a still limited home life. Happy Birthday from deep in the heart of Texas to Yoni and God's peace and healing on all of you.

Anonymous said...

Your updates, always bring me back to center,

I continue to pray for you all, and Toby is held snuggly in my heart. I'm so glad that you're all together, home in Brooklyn.

Stay tough...Keep the faith!

Anonymous said...

Even though I do not know you, I am thinking of you and praying hard for Toby!