a quick post to let you know that, unbelievably, we are at home in brooklyn, after being discharged at 6 pm today. right now the home health care nurse is in our kitchen, after hooking toby up to IV antibiotics that will run for an hour, until 11 pm. tomorrow morning it will be my turn to play nurse. and friday, we'll be back at the hospital outpatient clinic for transfusions.
in short, the attending doc questioned whether the hospital was a safe environment for toby, given that he's already fighting off a pretty rare bacteria called aerococcus viridans. quite a few of the children on the 9th floor have various respiratory infections, and though toby's counts have hit zero, this doc felt he would be better off at home. of course there are risks this way too, but we are praying for no fevers or further infections.
toby is neutropenic, so full-scale germ alert is on again. we will not be able to have any guests until toby's counts come back up, hopefully within a week or so. thanks to all who contacted us following yoram's awesome post of a couple of days ago. we want you to visit, but will need to postpone until it's safe.
tomorrow yoni turns 15 (!). we are grateful to be able to celebrate with our little family together.
love, mooki + stephen
Ed Clark, Christmas Guest
5 months ago